aniridia research

Aniridia & Neuropsychology Survey – FAQs

Thank you for your interest in furthering aniridia research by filling out the Aniridia and Neuropsychology survey. Below are the answers to Frequently Asked Questions about this survey. What is “Neuropsychology?” Neuropsychology is the study of the relationship between behavior, emotion, and the mind and their relationship to the central nervous system (the brain and spinal cord). …

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“Visual Acuity in Aniridia and WAGR Syndrome”

An article was recently published in the journal Clinical Ophthalmology regarding a new study comparing the visual acuity in aniridia vs. WAGR syndrome. Here is a plain language summary of the article, with a link to the full article below. Topic Overview Visual function varies greatly among persons with aniridia. Historically, the factors that determine …

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Logo - Outline of an eye, with ANA in the middle and Aniridia North America underneath

ANIRIDIA NORTH AMERICA Created as US Nonprofit Organization

The recent creation of a new nonprofit organization, Aniridia North America (ANA), has been announced by its founding Board of Directors.  Aniridia North America is a charitable organization created to represent, serve, and support the North American community of persons affected by aniridia and their families, patient advocacy organizations, and clinicians and scientists. ANA was …

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A large group of people who attended the 2019 Symposium. They are standing in front of one of the historic buildings at UVA.

2019 John F. Anderson Symposium: PAX6, Aniridia & Beyond

The following notes were taken by Kelly Trout, BSN, RN, at the 2019 John F Anderson Symposium. Kelly is Director, Research and Medical Advocacy for the International WAGR Syndrome Association. Please note that many of the presentations involved “basic science” research on how the eye develops before and after birth, often using animal models, rather …

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Logo - Outline of an eye, with ANA in the middle and Aniridia North America underneath

Aniridia North America
106 W. Calendar Ave
Suite 122
LaGrange, IL 60525

Aniridia North America is registered as a 501(c)(3) non-profit organization in the United States.

EIN: 86-2917141

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