ANA is pleased to announce the creation of a Patient and Family Advisory Board.
The purpose of the ANA Patient and Family Advisory Board (PFAB) is to provide persons with aniridia and their family members a pathway to actively engage with ANA, identify opportunities for patient community engagement, and provide feedback from a patient perspective regarding the plans, activities, and patient-oriented materials and programs of ANA.
The Patient and Family Advisory Board is drawn from the following groups in the North American aniridia community:
- Persons with aniridia (“patients”)
- Family members of persons with aniridia
- Official representatives from partner and stakeholder organizations
- ANA Board of Directors
The inaugural PFAB consists of the following members:
- Gabriela Abdo
- Grace Ball
- Grayson Chinn
- Janelle Collins
- Rosalyn Fast
- Barbara Gala
- Shari Krantz
- Adison Lemmon
- Justin Nelson
- Michael Schain
- Kelly Trout
- Susan Wolfe
For more information, see the Patient and Family Advisory Board page.