2023 ANA Symposium: A Patient-Focused Summary of Presentations
Read how scientists are working to solve the aniridia puzzle. A patient-focused summary of presentations given at the 2023 ANA Symposium can be downloaded here.
2023 In Review & 2024 Strategic Plan
Thank you to all who supported and donated to ANA in 2023. Thanks to your support, great things were achieved! The ANA Board of Directors is looking forward to another great year in 2024.
The infographics below provide a snapshot of the accomplishments in 2023 and highlight some goals set for 2024.
Aniridia & Neuropsychology Survey – FAQs
Thank you for your interest in furthering aniridia research by filling out the Aniridia and Neuropsychology survey. Below are the answers to Frequently Asked Questions about this survey. What is “Neuropsychology?” Neuropsychology is the study of the relationship between behavior, emotion, and the mind and their relationship to the central nervous system (the brain and spinal cord). …
Focal Point – Episode 3 – Aniridia 101: How to Care for a Child’s Eyes with Aniridia
ANA’s 3rd episode of Focal Point –Aniridia 101: How to Care for a Child’s Eyes with Aniridia– was held on August 22 with Guest: Dr. Alex Levin. View a recording here.
ANA to Host Biennial Scientific Symposium Dedicated to PAX6 and Aniridia
Charlottesville, VA – Aniridia North America (ANA) announces its biennial scientific event to strengthen and expand research focused on aniridia and related problems. The 2023 Aniridia North America Symposium: PAX6, Aniridia, and Beyond will bring together top researchers from around the world for the presentation and discussion of innovative and often unpublished research at the …
“Report on the 2021 Aniridia North America symposium on PAX6, aniridia, and beyond”
ANA is pleased to announce that the article “Report on the 2021 Aniridia North America symposium on PAX6, aniridia, and beyond” has been published in July 2023 issue of The Ocular Surface journal. Abstract “The inaugural Aniridia North America (ANA) Symposium was held on the first weekend in November 2021 in Charlottesville, VA, at the University of Virginia. …
ANA Launches Patient and Family Advisory Board
ANA is pleased to announce the creation of a Patient and Family Advisory Board. The purpose of the ANA Patient and Family Advisory Board (PFAB) is to provide persons with aniridia and their family members a pathway to actively engage with ANA, identify opportunities for patient community engagement, and provide feedback from a patient perspective regarding …
“Visual Acuity in Aniridia and WAGR Syndrome”
An article was recently published in the journal Clinical Ophthalmology regarding a new study comparing the visual acuity in aniridia vs. WAGR syndrome. Here is a plain language summary of the article, with a link to the full article below. Topic Overview Visual function varies greatly among persons with aniridia. Historically, the factors that determine …
ANA Joins Global Genes & Formalizes Partnerships
ANA recognizes that, in the rare disease community, we are stronger when working together with those who share common goals. Recently, ANA acted upon this vision by joining Global Genes and formalizing partnerships with VFT and the IWSA.
Focal Point – Episode 2 – Glaucoma in Aniridia, Part 2
Focal Point is a webinar series presented by Aniridia North America. This is the second episode, with a focus of Glaucoma in Aniridia. Dr. Peter Netland joins Janelle Collins to give an overview of Glaucoma and to answer a multitude of frequently asked questions that were not covered in episode 1.
