Aniridia & Neuropsychology Survey – FAQs

Aniridia & Neuropsychology Survey – FAQs

Thank you for your interest in furthering aniridia research by filling out the Aniridia and Neuropsychology survey. Below are the answers to Frequently Asked Questions about this survey. What is “Neuropsychology?” Neuropsychology is the study of the relationship between behavior, emotion, and the mind and their relationship to the central nervous system (the brain and spinal cord). …

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ANA to Host Biennial Scientific Symposium Dedicated to PAX6 and Aniridia

Charlottesville, VA  – Aniridia North America (ANA) announces its biennial scientific event to strengthen and expand research focused on aniridia and related problems. The 2023 Aniridia North America Symposium: PAX6, Aniridia, and Beyond will bring together top researchers from around the world for the presentation and discussion of innovative and often unpublished research at the …

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ANA Launches Patient and Family Advisory Board

ANA is pleased to announce the creation of a Patient and Family Advisory Board. The purpose of the ANA Patient and Family Advisory Board (PFAB) is to provide persons with aniridia and their family members a pathway to actively engage with ANA, identify opportunities for patient community engagement, and provide feedback from a patient perspective regarding …

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“Visual Acuity in Aniridia and WAGR Syndrome”

An article was recently published in the journal Clinical Ophthalmology regarding a new study comparing the visual acuity in aniridia vs. WAGR syndrome. Here is a plain language summary of the article, with a link to the full article below. Topic Overview Visual function varies greatly among persons with aniridia. Historically, the factors that determine …

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Background is a black wood grain that's intended to look like a desk. On the left are images of a computer, notepad, pencil and glasses that look like they are sitting on the desk. In the middle is the ANA logo, followed by text as follows: "Focal Point, Focus: Glaucoma, Part 2, Host: Janelle Collins, Guest: Dr. Peter Netland"

Focal Point – Episode 2 – Glaucoma in Aniridia, Part 2

Focal Point is a webinar series presented by Aniridia North America. This is the second episode, with a focus of Glaucoma in Aniridia. Dr. Peter Netland joins Janelle Collins to give an overview of Glaucoma and to answer a multitude of frequently asked questions that were not covered in episode 1.

Black rectangle at top that says "2022 In Review" with ANA Logo. Underneath that, the words "Represent, Serve, Support" are in a light blue rectangle. Under the "Represent" word, there are three things listed with graphics for each; 1) Presented at the 6th European Aniridia Conference 2) Participated in Global Aniridia Day Webinar 3) Attended WAGR Weekend. Under "Serve", these three things are listed: 1)3000 website views, 2) Launched Webinar series, and 3) Created YouTube Channel. Under "Support", 1) Published Patient Overview 2021 ANA symposium, 2) Formed Medical and Scientific Advisory Board, and 3) Created Facebook Page. At the bottom of the page is the ANA Mission: Represent, serve and support the North American community of persons affected by aniridia and their families, patient advocacy organizations, and clinicians and scientists.

ANA Completes First Year as Non-profit Organization

2022 was Aniridia North America’s first calendar year after receiving its 501(c)(3) determination from the IRS. Recently, the Board of Directors met for their annual in-person meeting to reflect on the accomplishments of the last year, and to develop a strategic plan for 2023.

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Aniridia North America
106 W. Calendar Ave
Suite 122
LaGrange, IL 60525

Aniridia North America is registered as a 501(c)(3) non-profit organization in the United States.

EIN: 86-2917141

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